Charlie Gard and the Tenacity of Hope

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Credit:  Independent

There is a hardly a more compelling example of the ravages of disease warring against the hope for life than that of Charlie Gard.  Charlie is almost a year old now, born last August in the U.K.  Shortly after his birth, it was discovered that he had a rare genetic condition known as mitochondrial DNA depletion syndrome, which affects vital internal organs such as, as in Charlie’s case, the kidneys and brain.  At present, Charlie is being kept alive by a ventilator, but the hospital at which Charlie is staying asked a judge back in March to rule that life support should be discontinued, which the judge ruled in support of in April.  Charlie’s parents appealed the ruling, but did not get it overturned.  Both President Trump and Pope Francis have signaled their support for Charlie, with the pope even offering Charlie a spot at the Vatican pediatric hospital for continuing treatment.  Charlie’s parents have asked to have their son transferred to the U.S. for an experimental treatment, which has had some limited success, but the U.K. hospital has refused to do so, citing legal hurdles.

The issues in this dispute are legion.  Should a judge have the ability to trump parents’ wishes with regard to their own child, provided that the parents are seeking the genuine welfare and, in this case, the continued life, of their son?  Are Charlie’s parents seeking the correct course of action, considering their son is not able to live, at least at this point, apart from extraordinary and continuous medical intervention?  And what are the hopes for some sort of improvement or change in Charlie’s condition if he is moved elsewhere to receive treatment?

It is the last of these questions that is most captivating to me because it is the question that sits in the background of the first two questions.  The U.K. believes there is no real hope for Charlie’s recovery.  Charlie’s parents believe there is enough hope for, at minimum, some sort of improvement that they want to continue his life support and investigate an experimental treatment.  This battle royal, then, boils down to hope.

Over the course of my ministry, I have known more than one person who was terminally ill and, when presented with an option for an experimental treatment, declined and instead chose to go into hospice because they did not see any real hope for healing, even with the treatment.  This does not mean, however, that these people did not have any hope.  Their hope was simply located in a different place – not in a treatment, but in a Lord who can call even the dead to life.  Whether it is a temporary stay on death by means of a medical treatment, or an eternal resurrection on the Last Day by means of a trumpet call and a returning Christ, hope for life, it seems, will not be squelched.

Theologically, the irrepressibility of hope for life makes sense because, in the beginning, death was not part of God’s plan.  Contrary to Yoda, death is not a natural part of life – and we know it, even if only intuitively.  Death, Scripture says, is an enemy to be defeated.  And though Charlie’s parents cannot conquer death like Christ, they do seem voraciously intent on confronting death through the very best that medicine has to offer their son.

It does unsettle me that a judge would arrogate to himself the prerogative of telling two parents whether or not their son can receive a potentially life-saving treatment.  I will confess that, according to the information at hand, the hospital is probably correct in its estimation of Charlie’s recovery prospects.  But hope has a funny way of looking beyond the information at hand to divine intervention.  And that is a hope that is worth holding on to.  Indeed, as Christians, we know that is the hope Jesus died to give and rose to secure.  I hope the hospital and the British legal system can respect that hope.

Physician-Assisted Suicide and Who We Really Are

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Physician-assisted suicide has gained limited acceptance in many regions of the country because it has been peddled, in part, as an option for those suffering from the excruciating pain of certain types of terminal illnesses.  Supervised suicide was sold as a way to alleviate physical misery.  A new study published in The New England Journal of Medicine, however, suggests that the actual reasons people choose assisted suicide are quite different from that of physical suffering.   One of the researchers in the study, Madeline Li, explains that many people consider assisted suicide because of:

…what I call existential distress.  [For some people,] their quality of life is not what they want. They are mostly educated and affluent – people who are used to being successful and in control of their lives, and it’s how they want their death to be.

In one instance cited in this study, a marathon runner found herself confined to her bed because of cancer.  She wanted to take her own life because “that was not how she saw her identity,” Li explained.  In another case, a university professor wanted to die because, according to Li, “he had a brain tumor, and he didn’t want to get to the point of losing control of his own mind, [where he] couldn’t think clearly and couldn’t be present.”

This study reveals that physician-assisted suicide can turn out to be not so much a palliative response to physical pain, but an angry response to the loss of how we see ourselves.  A marathon runner wants to end her life when she can longer run marathons.  A university professor sees no reason to live if he is no longer able to think at the level he once was.  It turns out that when people lose what gives them their identities, they often lose the very will to live.

If nothing else, this study should serve as a warning concerning the dangers of finding your meaning, purpose, and identity in something you are or in something you do, for these types of identities can all too easily be shattered by the wily ravages of this world and this life.  This is why, as Christians, we are called to find who we are in Christ.

When a rich man comes to Jesus in Mark 10 and asks Him, “What must I do to inherit eternal life?” Jesus responds by citing a sampling of the Ten Commandments: “You shall not murder, you shall not commit adultery, you shall not steal, you shall not give false testimony, you shall not defraud, honor your father and mother.”  When the man boasts to Jesus, “All these I have kept as a little boy,” Jesus responds, “One thing you lack. Go, sell everything you have and give to the poor, and you will have treasure in heaven. Then come, follow Me.”  The rich man, the story says, “went away sad, because he had great wealth.”  It turns out that this man found his meaning, purpose, and identity in his wealth.  And when Jesus asked him to give up the source of his earthly identity, he could not – even to follow Jesus eternally.  May we never make the same devastating mistake.

Physician-assisted suicide carries with it a whole host of ethical problems, including the temptation to place profits over people.  Just last week, The Washington Times reported on a doctor who claimed that some Nevada insurance companies refused to cover certain life-saving treatments he requested for his patients because they were too expensive.  Instead, these companies offered to help his patients end their lives.  If this story is true, such a practice is nothing short of appalling.  But sadly, far too many people do not need a creepy suggestion from a greedy insurance company to consider taking their own lives.  They only need to be so turned in on who they are in this life that they forget about who they are in Christ.

Suicide may be some people’s answer to a loss of identity.  But suicide cannot give someone a new identity.  It cannot give someone hope.  Only Jesus can do that.  So let us find ourselves in Him.

“I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.” (Romans 8:18)

Death Is Dying

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Even as we celebrated Easter yesterday, it was difficult not to be burdened by the death we see around us every day.  This past Sunday, 44 worshipers lost their lives at St. George Church in Tanta and St. Mark’s Cathedral in Alexandria, both in Egypt, when ISIS suicide bombers detonated themselves in the middle of these churches’ Palm Sunday worship services.  Closer to home, in San Bernardino, a man signed himself into an elementary school at the front desk and then proceeded to walk into the classroom where his estranged wife was teaching and fatally shoot her while also wounding two students, one of whom later died from the injuries he sustained.  After his shooting spree, he took his own life.  Then, of course, earlier this month, there were the sarin gas attacks by the Assad regime against his own people in northwestern Syria.  Death is all around us.

And this is why I am so glad we get to celebrate Easter.

The story of Easter is a story of many things.  It is a story of joy, as the people close to Jesus realize the man who they thought was dead has risen.  It is a story of fear, as the women who come to the tomb that first Easter morning encounter angelic beings who startle and scare them with their fantastic message.  But it is also a story of subversion.  It is a story of subverting all those who prefer death to life.

N.T. Wright explains the subversive nature of Easter well:

Who…was it who didn’t want the dead to be raised?  Not simply the intellectually timid or the rationalists.  It was, and is, those in power, the social and intellectual tyrants and bullies; the Caesars who would be threatened by a Lord of the world who had defeated the tyrant’s last weapon, death itself; the Herods who would be horrified at the postmortem validation of the true King of the Jews.[1]

In a world where terrorist attacks, school shootings, and chemical bombings instill fear into all who see and hear about them, the resurrection of Jesus reminds us that, in the words of the prophet, “no weapon forged against [us] will prevail” (Isaiah 54:17), even if these weapons kill us, for “the one who raised the Lord Jesus from the dead will also raise us” (2 Corinthians 4:14).  A tyrant may kill us.  But God will raise us.  This is Easter’s promise.  And this is why it is so good to celebrate Easter at a time like this.  For Easter reminds us that even if this world full of death, we need not fear.  Christ has risen.  And because He has risen, we will rise.

Take that, death.

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[1] N.T. Wright, Surprised by Hope (New York:  HarperOne, 2008), 75.

Castro’s Death and the Christian’s Hope

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When news first came a little over a week ago that the longtime brutal dictator of the island nation of Cuba, Fidel Castro, had died, the reactions to his death ranged from the viscerally ecstatic to the weirdly and inappropriately sublime.  Many reports simply sought to chronicle the events of Castro’s life without much moral commentary, but, as Christians, we know that a man who, over the course of his raucous reign, murdered, according to one Harvard-trained economist, close to 78,000 people is due at least some sort of moral scrutiny.  As Cuba concludes a time of mourning over the death of a man who himself brought much death, I humbly offer these few thoughts on how we, as Christians, should ethically process the life of one of history’s most famous and infamous leaders.

We should not be afraid to call wickedness what it is.

It is true that there were some bright spots in the midst of Castro’s morally dark oppression of Cuba.  Cuba’s literacy rate, for instance, stands at 99.8 percent thanks to its government’s emphasis on education.  It has also been reported that the robust healthcare system there has resulted in one of the lowest infant mortality rates in the world at 5.8 deaths per 1,000 births, although The Wall Street Journal has called this number into question.

Whatever good Castro may have done should not excuse or serve as rationalization for his gruesome human rights violations.  As ABC News reports:

Over the course of Castro’s rule, his regime rounded up people for nonviolent opposition to his government and subjected many to torture and decades-long imprisonment.

In a January 1967 interview with Playboy magazine, Castro admitted there were 20,000 “counter-revolutionary criminals” in Cuba’s prisons…

Under his dictatorship, Castro arrested dissidents and gay citizens and forced them into labor or prison, according to human rights groups. He is also responsible for mass executions of people who spoke out against his government.

There is simply no way to mask or minimize the atrocities that Castro committed.  They were – and are – evil.  As Christians, we should be willing to call evil for what it is – not only for the sake of upholding moral standards, but for the sake of being honest about the way in which Castro’s immorality took countless human lives.

We should remember those who Castro brutalized and pay attention to those who are currently being brutalized.

The website cubaarchive.org is devoted to remembering those Castro murdered.  The stories in the “Case Profiles” section of the site are heart-rending.  In one case, a tugboat carrying children was intentionally sunk by order of Castro himself because the people on it were trying to escape Cuba.  In another case, U.S. citizen Francis Brown was given a lethal injection at a Guantanamo hospital that ultimately killed him while, on that same day, his daughter’s full term unborn child was murdered by doctors at a Havana hospital.  These stories should not be forgotten.  These are victims who should not fade into the recesses of history, for they remind us who Fidel Castro really was – an egomaniacal madman with no regard for any life besides his own.

These stories should also lead us to seek justice for those currently suffering under oppressive and brutal regimes.  The stories of people in places like Syria, Iraq, and Sudan should demand our attention and touch our hearts.

Though we should not eulogize Castro’s life, we also should not revel in his death.

It is understandable that many have celebrated the death of a despot like Castro.  Indeed, Scripture understands and points to this reality: “When the righteous prosper, the city rejoices; when the wicked perish, there are shouts of joy” (Proverbs 11:10).  But even if this is an understandable and natural reaction to the death of a dictator, we do well to remember that God’s reaction to the death of the wicked is more measured: “I take no pleasure in the death of the wicked, but rather that they turn from their ways and live. Turn! Turn from your evil ways” (Ezekiel 33:11)!  God refuses to rejoice at the death of the wicked because He understands that such rejoicing ultimately serves no purpose. For when the wicked die, they stand eternally lost and condemned.  This helps no one and fixes nothing.  This is why God’s preference is not death, but repentance.  Death is merely the result of wickedness.  Repentance is the remedy to wickedness.  God would much prefer to fix wickedness than to let it run its course.

As Christians, we are called to mimic God’s character in our responses to the death of the wicked: “Do not gloat when your enemy falls; when they stumble, do not let your heart rejoice, or the LORD will see and disapprove and turn His wrath away from them” (Proverbs 24:17-18).  These verses caution us not to revel in the death of an enemy while also reminding us that God will render a just judgment on the wicked.  And God’s justice is better than our jeers. 

We should find our hope in the One over whose death the world once reveled.

Perhaps the most striking aspect of God’s refusal to rejoice in the death of the wicked is the fact that the wicked once reveled in the death of His perfectly righteous Son.  The Gospel writer Mark records that when Jesus was on the cross:

Those who passed by hurled insults at Him, shaking their heads and saying, “So! You who are going to destroy the temple and build it in three days, come down from the cross and save Yourself!” In the same way the chief priests and the teachers of the law mocked Him among themselves. “He saved others,” they said, “but He can’t save Himself! Let this Messiah, this king of Israel, come down now from the cross, that we may see and believe.”  (Mark 15:29-32)

For God not to rejoice in the death of the wicked when the wicked rejoiced in the death of His Son reveals not only God’s gracious character, but His perfect plan.  For God deigned that, by the mocking of the wicked, wickedness itself should be defeated.  Indeed, at the very moment the wicked thought they had succeeded in defeating God’s Holy One, God’s Holy One had accomplished His mission of opening salvation to the wicked.  Our hope, then, is not in the death of a wicked man, but in the crucifixion of a righteous One.  His righteousness is stronger than Castro’s wickedness.  That is the reason we can rejoice.

Standing for Life

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I grew up in the first state in our union to legalize physician-assisted suicide.  When Oregon passed the Death with Dignity Act in 1997, which allowed a terminally ill patient to administer lethal drugs to him or her self under the direction of a doctor, it stirred a lot of controversy.  Though other states and regions have since followed suit, even nearly twenty years later, laws like the Death with Dignity Act still stir a lot of controversy and concern.

Our nation’s capital is now joining the fray of this debate with the D.C. Council readying themselves to vote tomorrow on legislation that would allow doctors to prescribe lethal drugs to terminally ill people. Fenit Nirappil of The Washington Post explains:

A majority of D.C. Council members say they plan to vote for the bill when it comes before them Tuesday.

But chances for enactment are unclear. The council will have to vote on the bill twice more by the end of the year.  Mayor Muriel E. Bowser (D) has not indicated whether she will sign the legislation, although her health director has testified against it, saying it violates the Hippocratic oath. It is not certain that proponents have enough votes for an override. And Congress could also strike down the legislation.[1]

Many in the African-American community of Washington D.C. strongly oppose the legislation.  The charge against the legislation is being led by Rev. Eugene Rivers III, who is leading a group called No DC Suicide.  Rev. Rivers calls the legislation “back end eugenics,” and believes it is aimed at eliminating poor blacks.  Leona Redmond, a community activist, echoes Rev. Rivers’ sentiment, saying, “It’s really aimed at old black people. It really is.”  Proponents of the law have made countless assurances that there is no racial component to the legislation.  Donna Smith, herself an African-American and the organizer for Compassion and Choices, argues, “This just isn’t a ‘white’ issue.  This issue is for everyone who’s facing unbearable suffering at the end of life.”

Certainly, any move by any group to end people’s lives based on their race is repulsive.  Indeed, if this legislation is enacted and, even if unintentionally, disproportionately affects a particular race, serious questions will need to be asked and stern objections will need to be raised.  The problem for the Christian, however, extends beyond the boundaries of race to the dignity of humanity itself.

In the third article of the Nicene Creed, Christians confess, “I believe in the Holy Spirit, the Lord and giver of life.”  Fundamental to what we confess as Christians is that God is the giver of life.  When the apostle Peter is preaching a sermon on Pentecost day, he says to those assembled, “You killed the author of life, but God raised Him from the dead” (Acts 3:15).  Because God is the author of life, Christians believe that life is a sacred gift from God to us and ought to be stewarded carefully and lovingly by us.  This is why orthodox Christianity has consistently stood against the taking of life whether that be through abortion at life’s beginning or through physician-assisted suicide as life may be nearing its end.  Both of these practices treat life not as a gift to be stewarded, but as burden to be manipulated and, ultimately, destroyed.

It is true that life can sometimes become burdensome.  But when a young lady becomes terrified at the specter of an unexpected pregnancy, or when a person is suffering through the throes of a terminal illness, we must remind ourselves that life itself is not the culprit in these types of tragic situations.  A world broken by sin is the culprit.  So attacking life itself doesn’t relieve the burden.  Instead, attacking life actually succumbs to the burden because it capitulates to what sin wants, which is always ultimately death.  To fight against sin, therefore, is to fight for life.

As Christians fight for life, it is very important that they fight for all of life and not just certain moments in life.  All too often, Christians have been concerned with fighting for those at the beginning of life as they stand against abortion, or fighting for those who may be nearing the end of life as they stand against physician-assisted suicide.  But there is so much more to life than just its beginning and its end.  Christians should be fighting against human trafficking, which treats lives as commodities to be traded rather than as souls to be cherished.  Christians should be fighting against racism, which trades the beauty of a shared humanity for the dreadfulness of discriminatory distinctions.  Christians should be concerned with genocide in places like Aleppo, as Syria’s army continues to launch indiscriminate military strikes against its own citizens with horrifying results.  To celebrate life means to celebrate all of life – from the moment of conception to the moment of death and everything in between.   

So let’s stand for and celebrate life.  After all, after this life comes everlasting life through faith in Christ.  Life will win out in the end.  So we might as well surrender to and celebrate life now.

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[1] Fenit Nirappil, “Right-to-die law faces skepticism in nation’s capital: ‘It’s really aimed at old black people,’” The Washington Post (10.17.2016).